Active Studies-Accepting

At any time, the PNRC typically has between 30-35 active studies or surveys.  Our studies span a broad spectrum of clinical subjects with 2-4 participating sites for small studies and more than 30 sites for larger studies.  

It is the policy of the PNRC that our members remain actively engaged at all times in at least 1 study other than their own while a member.   This commitment to ongoing extensive collaboration is a major strength of the PNRC and is especially powerful with regard to the study of rare diseases, which are very common among pediatric nephrology patients.

The Active Studies listed in the website are all currently accepting new participating sites.   If you are interested in more information on any study or participating in it, please click on the name of one of the listed Principal Investigators.   This leads to the Members Only section where you will be able to search for the physician's name and email address. You must be a registered PNRC member to enter this section.  If you are not a member, see the membership icon below to apply.
The Pediatric Lupus Nephritis of Mycophenolate Mofetil (PLUMM) Study
Hermine Brunner
Clinical Features and Long-term Outcomes of Tubulointerstitial Nephritis (TINU)
Darcy Weidemann
Optimal Timing of Kidney Transplant in Children with Lupus Nephritis
Abanti Chaudhuri
    Identifying Barriers to Phosphorus Binding Medication Compliance in Pediatric Dialysis Patients- Questionnaire Development and Feasibility
 Alison Schoch
Pediatric Glomeruli w/ Crescents
Guillermo Hidalgo
DoNUT Project
Simone Sanna-Cherchi
Genotype-phenotype characterization of WT1 related disorders in Pediatric Nephrology Consortium
Gia Oh
    Impact of switching from Tacrolimus to an alternate agent on New Onset Diabetes after Kidney Transplant (NODAT) and rejection
Katie Sullivan
Tacrolimus in the Treatment of Pediatric Steroid Resistant Nephrotic Syndrome
Jill Warejko/Avi Traum
RNC TDS Infection in Peds Kidney Transplant Study Proposal
Travis Churilla/Sarah Kizilbash
GNOM kids study
Kouri
Genetic, Genomic & Biomarker Studies of Henoch-Schonien Purpura & IgA Nephropathy in Kids (GiGA)
Krzystof Kiryluk
SSNS GWAS Study
Rasheed Gbadegesin
KidCOM
Christoph Licht
Long Term Renal Outcomes after Neonatal and Pediatric Renal Vein Thrombosis
Mayra Oseguera/Bryce Kerlin
Non HLA mediated antibody mediated rejection
Katie Sullivan/Rachel Engen
Second Line Therapies in the treatment of BK Viremia/Nephropathy
Avi Traum
Food and Nutrition Security in Hemodialysis Patients
Neha Pottanat/Elizabeth Onugha
BK Viremia in Pediatric Heart Transplant: A Study on Surveillance Patterns & Impact on GFR
Ruchi Mahajan/Priya Verghese
Kidney transplant outcomes in pediatric patients with tracheostomy: A case series study
Saritha Ranabothu/Avi Traum
Hypercalciuric Hypercalcemia due to CYP24A1, SLC 34A1 and SLC34A3 Mutation-Long term Follow-up, Management and Prognosis
Shelly Levi, Ruth Schreiber and Asaf Lebel
Ambulatory blood pressure monitoring thresholds for predicting left ventricular hypertrophy in children age 6-12 years: A Pediatric Nephrology Research Consortium Study
Christine Sethna, Afsana Jahan and Ikuyo Yamaguchi
Transplant outcomes in pediatric patients with suboptimal bladder
Saritha Ranabothu and Samhar Al-Akash
Risk factors for spontaneous resolution versus persistence of childhood idiopathic nephrotic syndrome- a multicenter study
Evgenia Gurevich and Daniel Landau
Provider Survey to Assess Perception of Impact of Pre-transplant Hypotension on Transplant Listing Eligibility and Outcomes in Pediatric Patients
Shireen Hashmat and Olga Charnaya
Multicenter Study of FSGS Recurrence in Pediatric Kidney Transplant Recipients
Olga Charnaya and Ruchi Gupta Mahajan
Treatment Practice Pattern in Pediatric Patients with C3 Glomerulopathy
Ana Solis Zavala/Bradley Dixon
Role of Viral Infections in Idiopathic Nephrotic Syndrome
Anne Kouri and Gabriel Cara-Fuentes
Looking at Research in Pediatric Nephrology through a DEI Lens
Shireen Hashmat and John Mahan
AWAKEN 2.0: Towards Expanding our Understanding of Neonatal Acute Kidney Injury (type 1B PNRC Study
Michelle Starr and Dave Selewski
Sodium Zirconium Cyclosilicate for the treatment of acute and chronic hyperkalemia in pediatric patients
Kelly Garrity and Emilia Cadiz
Contemporary practices of dry weight estimation and ultrafiltration on blood pressure control in pediatric hemodialysis patients- A PNRC Study
Donna Claes, Neha Pottanat, Amy Wilson
Hepatoblastoma in pediatric patients with ESR 
Kera Luckritz and Vivan Shih
Pediatric ANCA Vasculitis Management Practices in North America
Ankana Daga and Brian Stotter
Membranous-like Glomerulopathy with Masked Monotypic IgG deposits (MGMID) Presentation and Treatment Practice in Pediatrics
Emilia Cadiz and Christine Sethna
Prevalence and Associations of Nephrocalcinosis in Pediatric Kidney Transplant Recipients
Stella Kilduff, Yaritzy Astudillo, Sharon Bartosh
Outcome of Pediatric ESKD patients with PRA >20%
Dechu Puliyanda, Olga Charnaya, Rima Zahr, Asha Moudgil
Fecal Microbiota Transplant in Pediatric Kidney Transplant Recipients: Safety and Efficacy
Nancy Rodig and Sarah Kizilbash
rFSGS-MULTI: a multiomic resource to study the pathobiology of recurrent FSGS and find new treatments
Simone Sanna-Cherchi, Rasheed Gbadegesin, Alessia Fornoni